21/02/12

Dear Diary,

Having quite a stressful start to my week.  My previous mobility social worker has had to leave due to unforseen circumstances, and it would seem that Pharoah has hardened his heart like when Moses was in 

Egypt appealing for the Israelites to be freed from bondage.  My Pharoah in my life is the new management that has been put in place.  There are so many restrictions set by the government due to lack of funding that it has led to me the client suffering.  

Everybody involved in my care should be aware of how unnecessary stress has an impact on my Fibromyalgia symptoms, and yet it seems this is disregarded.  

I do appreciate there are people worse of than me having priority needs. I am grateful for any support I have, but what is not appreciated is changes in my normal routine because of ignorance to knowledge that has been received by social services from medical professionals.  Supporting letters with regard to the effects of PTSD, Depression and Fibromyalgia have been written over and over again and sent to them, but still it seems like this is disregarded.  People are just human, but when you take on a job role you have studied to do at degree level, and been trained in, the norm should be to execute that job role to the best of your ability and in line with government standards.  If not step aside for someone else to do your job role who can carry out these duties with better people skills.  

It would help if social workers were to accompany care support workers and see the difficulties they face on a day to day basis, then report this back to their managers, who in turn should be thinking first for the health and safety of a client and fighting for their needs to be taken care of.

However I get the feeling that with the recession, lack of funding and constant increase in work loads everybody is getting it from all angles and this is affecting their job performance.  I just wonder if things will get better or worse, or worse before they get better.  Even so I feel like I'm going around in circles and it is becoming increasingly difficult for me to hold on.

My son is feeling the impact of the lack of support now so something has to definitely be done.

In the words of a Whitney Houston song who sadly passed away Lord "I look to you...and when all my strength is gone...I look to you" help.